Junior medical doctors’ decision making when using advance care directives to guide treatment for people with dementia: a cross-sectional vignette study | BMC Medical Ethics
Alzheimer’s Disease International. World Alzheimer Report 2019: Attitudes to dementia. Alzheimer’s Disease International; 2019.
Fogg C, Griffiths P, Meredith P, Bridges J. Hospital outcomes of older people with cognitive impairment: an integrative review. Int J Geriatr Psychiatry. 2018;33(9):1177–97.
Google Scholar
Fogg C, Meredith P, Culliford D, Bridges J, Spice C, Griffiths P. Cognitive impairment is independently associated with mortality, extended hospital stays and early readmission of older people with emergency hospital admissions: a retrospective cohort study. Int J Nurs Stud. 2019;96:1–8.
Google Scholar
Panayiotou A. Preventing Avoidable Hospital Admissions for People with Dementia: Final report. Melbourne Ageing Research Collaboration; 2018.
Shepherd H, Livingston G, Chan J, Sommerlad A. Hospitalisation rates and predictors in people with dementia: a systematic review and meta-analysis. BMC Med. 2019;17(1):130.
Google Scholar
Australian Institute of Health and Welfare. Hospital care for people with dementia 2016–17. Canberra: AIHW; 2019.
Joling KJ, Janssen O, Francke AL, Verheij RA, Lissenberg-Witte BI, Visser P-J, et al. Time from diagnosis to institutionalization and death in people with dementia. Alzheimers Dement. 2020;16(4):662–71.
Google Scholar
Brodaty H, Seeher K, Gibson L. Dementia time to death: a systematic literature review on survival time and years of life lost in people with dementia. Int Psychogeriatr. 2012;24(7):1034–45.
Google Scholar
Rait G, Walters K, Bottomley C, Petersen I, Iliffe S, Nazareth I. Survival of people with clinical diagnosis of dementia in primary care: cohort study. BMJ. 2010;341:c3584.
Google Scholar
Brayne C, Gao L, Dewey M, Matthews FE. Dementia before death in ageing societies–the promise of prevention and the reality. PLoS Med. 2006;3(10):e397.
Google Scholar
Dementia Australia. Dying Well: Improving Palliative and End of Life care for people with dementia. Victoria; 2019.
Australian Institute of Health and Welfare. Patterns of health service use by people with dementia in their last year of life: New South Wales and Victoria. Canberra: AIHW; 2020.
Moon F, McDermott F, Kissane D. Systematic review for the quality of end-of-life care for patients with dementia in the hospital setting. Am J Hosp Palliat Care. 2018;35(12):1572–83.
Google Scholar
Bartley MM, Suarez L, Shafi RMA, Baruth JM, Benarroch AJM, Lapid MI. Dementia care at end of life: current approaches. Curr Psychiatry Rep. 2018;20(7):50.
Google Scholar
Laver K, Cumming RG, Dyer SM, Agar MR, Anstey KJ, Beattie E, et al. Clinical practice guidelines for dementia in Australia. Med J Aust. 2016;204(5):191–3.
Google Scholar
van der Steen JT, Radbruch L, Hertogh CM, de Boer ME, Hughes JC, Larkin P, et al. White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care. Palliat Med. 2014;28(3):197–209.
Google Scholar
Radbruch L, Payne S. White paper on standards and norms for hospice and palliative care in Europe: part 1. Eur J Palliat Care. 2009;16(6):278–89.
Harrison Dening K, Sampson EL, De Vries K. Advance care planning in dementia: recommendations for healthcare professionals. Palliat Care. 2019;12:1178224219826579-.
Sudore RL, Fried TR. Redefining the “planning” in advance care planning: preparing for end-of-life decision making. Ann Int Med. 2010;153(4):256–61.
Google Scholar
Sudore RL, Heyland DK, et al. Outcomes that define successful advance care planning: a Delphi panel consensus. J Pain Symptom Manag. 2017;55:245.
Google Scholar
White B, Willmott L, Then S. Adults who lack capacity: Substitute decision-making. In: White B, McDonald F, Willmott L, editors. Health law in Australia 3rd ed. Australia: Thomson Reuters (Lawbook Co.); 2018. p. 207–70.
Piers R, Albers G, Gilissen J, De Lepeleire J, Steyaert J, Van Mechelen W, et al. Advance care planning in dementia: recommendations for healthcare professionals. BMC Palliat Care. 2018;17(1):88.
Google Scholar
Australian Government Department of Health and Ageing. National framework for advance care planning documents. In: DoHA, editor. Canberra; 2021.
Buck K, Detering KM, Pollard A, Sellars M, Ruseckaite R, Kelly H, et al. Concordance between self-reported completion of advance care planning documentation and availability of documentation in Australian Health and Residential Aged Care Services. J Pain Symptom Manag. 2019;58(2):264–74.
Google Scholar
Detering K, et al. Prevalence and correlates of advance care directives among older Australians accessing health and residential aged care services: multicentre audit study. BMJ Open. 2019;9(1):e025255.
Google Scholar
Bryant J, Sellars M, Sinclair C, Detering K, Buck K, Waller A, et al. Inadequate completion of advance care directives by individuals with dementia: national audit of health and aged care facilities. 2021;bmjspcare-2020-002767.
Wendrich-van Dael A, Bunn F, Lynch J, Pivodic L, Van den Block L, Goodman C. Advance care planning for people living with dementia: an umbrella review of effectiveness and experiences. Int J Nurs Stud. 2020;107: 103576.
Google Scholar
Australian Government Department of Health. National framework for advance care planning documents. 2021.
White B, McDonald FJ, Willmott L. Health law in Australia. 3rd ed. Sydney: Thomson Reuters Professional Australia Ltd; 2018.
McCarthy S, Meredith J, Bryant L, Hemsley B. Legal and ethical issues surrounding advance care directives in Australia: implications for the advance care planning document in the Australian my health record. J Law Med. 2017;25(1):136–49.
White B, Willmott L, Then S. Adults who lack capacity: Substitute decision-making. In: White BMF, Willmott L, editors. Health law in Australia. 3rd ed. Australia: Thomson Reuters (Lawbook Co.); 2018. p. 207–70.
Craig DP, Ray R, Harvey D, Shircore M. Factors which influence hospital doctors’ advance care plan adherence. J Pain Symptom Manage. 2020;59(5):1109–26.
Google Scholar
Cartwright C, et al. Medical practitioners’ knowledge and self-reported practices of substitute decision making and implementation of advance care plans. Intern Med J. 2014;44(3):234–9.
Google Scholar
Cartwright CM, White BP, Willmott L, Williams G, Parker MH. Palliative care and other physicians’ knowledge, attitudes and practice relating to the law on withholding/withdrawing life-sustaining treatment: Survey results. Palliat Med. 2016;30(2):171–9.
Google Scholar
Mitropoulos J, Austin N, Hunter P, Cairney H, Parikh S. Decision-making for older patients by Australian and New Zealand doctors with Advance Care Directives: a vignette-based study. Intern Med J. 2019;49(9):1146–53.
Google Scholar
White B, Willmott L, et al. Doctors’ knowledge of the law on withholding and withdrawing life-sustaining medical treatment. Med J Aust. 2014;201(4):229–32.
Google Scholar
White BP, Willmott L, Cartwright C, Parker M, Williams G, Davis J. Comparing doctors’ legal compliance across three Australian states for decisions whether to withhold or withdraw life-sustaining medical treatment: does different law lead to different decisions? BMC Palliat Care. 2017;16(1):63.
Google Scholar
Moore N, Detering K, et al. Doctors’ perspectives on adhering to advance care directives when making medical decisions for patients: an Australian interview study. BMJ Open. 2019;9(10):e032638.
Google Scholar
Bharmal A, Morgan T, Kuhn I, Wee B, Barclay S. Palliative and end-of-life care and junior doctors’: a systematic review and narrative synthesis. 2019;bmjspcare-2019-001954.
Siddiqui MF, Holley JL. Residents’ practices and perceptions about do not resuscitate orders and pronouncing death: an opportunity for clinical training. Am J Hosp Palliat Med. 2011;28(2):94–7.
Google Scholar
Yoong J, MacPhail A, Trytel G, Rajendram PY, Winbolt M, Ibrahim JE. Completion of Limitation of Medical Treatment forms by junior doctors for patients with dementia: clinical, medicolegal and education perspectives. Aust Health Rev. 2017;41(5):519–26.
Google Scholar
Lovell J, MacPhail A, Cunningham N, Winbolt M, Young CMF, Pham T, et al. Junior doctors and limitation-of-care orders: perspectives, experiences and the challenge of dealing with persons with dementia. Eur J Pers Cent Healthc. 2017;5:373–88.
Salins NS, Jansen W. Clinical audit on documentation of anticipatory “not for resuscitation” orders in a tertiary Australian teaching hospital. Indian J Palliat Care. 2011;17(1):42–6.
Google Scholar
Bryant J, Waller A, Pickles R, Hullick C, Price E, White B, et al. Knowledge and confidence of junior medical doctors in discussing and documenting resuscitation plans: a cross-sectional survey. Intern Med J. 2021;51(12):2055–60.
Google Scholar
Shepherd J, Waller A, Sanson-Fisher R, Clark K, Ball J. Knowledge of, and participation in, advance care planning: a cross-sectional study of acute and critical care nurses’ perceptions. Int J Nurs Stud. 2018;86:74–81.
Google Scholar
Parker M, Willmott L, White B, Williams G, Cartwright C. Law as clinical evidence: a new constitutive model of medical education and decision-making. J Bioethical Inq. 2018;15(1):101–9.
Google Scholar
White BP, Willmott L, Feeney R, Neller P, Then SN, Bryant J, et al. Limitations in health professionals’ knowledge of end-of-life law: a cross-sectional survey. BMJ Support Palliat Care. 2021.
Moore N, Detering KM, Low T, Nolte L, Fraser S, Sellars M. Doctors’ perspectives on adhering to advance care directives when making medical decisions for patients: an Australian interview study. BMJ Open. 2019;9(10):e032638-e.
Google Scholar
Tilse C, Wilson J, White B, Willmott L, Lawson D, Dunn J, et al. Community knowledge of law on end-of-life decision-making: an Australian telephone survey. J Law Med. 2019;27(2):399–414.
Willmott L, White B, Feeney R, Tilse C, Wilson J, Aitken J. Role of law in end-of-life decision-making: perspectives of patients, substitute decision-makers and families. J Law Med. 2021;28(3):813–30.
Burkle CM, Mueller PS, Swetz KM, Hook CC, Keegan MT. Physician perspectives and compliance with patient advance directives: the role external factors play on physician decision making. BMC Med Ethics. 2012;13(1):31.
Google Scholar
Hooper S, Sabatino CP, Sudore RL. Improving medical-legal advance care planning. J Pain Symptom Manag. 2020;60(2):487–94.
Google Scholar
Ries NM, Douglas M, Simon J, Fassbender K. Doctors, lawyers and advance care planning: time for innovation to work together to meet client needs. Healthc Policy. 2016;12(2):12–8.
Taylor P, Johnson MJ, Dowding DW. Clinical decision-making at the end of life: a mixed-methods study. BMJ Support Palliat Care. 2020;10(3):e26-e.
Google Scholar
Carey I, Shouls S, Bristowe K, Morris M, Briant L, Robinson C, et al. Improving care for patients whose recovery is uncertain. The AMBER care bundle: design and implementation. BMJ Support Palliat Care. 2015;5(1):12–8.
Google Scholar
Hunter and New England Area Health Service v A (2009) 72 NSWLR 88.
Cook JV, Dickinson HO, Eccles MP. Response rates in postal surveys of healthcare professionals between 1996 and 2005: an observational study. BMC Health Serv Res. 2009;9:160.
Google Scholar
FeldmanHall O, Mobbs D, Evans D, Hiscox L, Navrady L, Dalgleish T. What we say and what we do: the relationship between real and hypothetical moral choices. Cognition. 2012;123(3):434–41.
Google Scholar
link
